Claire’s Place Foundation, Inc. is a 501(c)(3) non-profit organization providing support to children and families affected by cystic fibrosis (CF). Claire’s Place Foundation is named in honor of Claire Wineland who lived with CF her entire life and passed away at the age of 21. Claire was an activist, author, TEDx Speaker, social media star and received numerous awards. Claire’s foundation was a way for her to assure that others living with CF enjoyed the same hope, strength and joy that she enjoyed. Recipient of Los Angeles Business Journal’s “Small Nonprofit of the Year,” the foundation provides grants to families affected by CF, offering both emotional and financial support. Today, Claire’s Place Foundation continues to carry on Claire’s legacy. For more information visit www.clairesplacefoundation.org (Read More...)
The Yellow Pages for Kids User Guide will teach you how to be a more effective advocate. Learn how to build your team, get educated about your child's disability, find special education advocacy training, locate a parent group, and get legal and advocacy help. You may also want to subscribe to The Special Ed Advocate, the free online newsletter from Wrightslaw.com. Subscribe or learn more by clicking here. (Read More...)
Girl Power 2 Cure - Rett University is a 501(c)(3) organization chartered to raise funding to support: 1. Rett Syndrome treatment and curative research 2. General family resource and emotional support of children/families affected by Rett Syndrome 3. Educational programs for disabled and non-verbal children suffering from Rett Syndrome and other debilitating neurological conditions (Downs Syndrome, CP, Angelman Syndrome, Autism, etc.) which limit their ability to communicate, read, and write in traditional classroom settings (includes teacher and professional training/seminars for therapists and other specialists targeting services to complex-needs individuals). Note: Rett Syndrome is a debilitating neurological condition which predominantly affects females, robbing them of the ability to speak, walk, or use their hands. It is caused by a random genetic mutation on the X-chromosome. 1 in 10,000 girls are affected, without regard to race, origin or any other common factor. (Read More...)
Our Vision: People First Through Service, Advocacy, Respect, and Choice - A vision for leadership in service and advocacy for individuals with developmental disabilities. San Andreas Regional Center recognizes the ongoing need for advocacy to sustain the original intent and promise of the Lanterman Developmental Disabilities Act and commits itself to protecting its provisions. San Andreas Regional Center strives for community partnership and excellence in customer service with its well-trained staff and service providers who use up-to-date technology, are good at what they do and are committed to this vision. San Andreas Regional Center enables the individuals it serves and their families to determine what happens in their lives. San Andreas Regional Center fulfills this vision through respect for the people it serves and their families, friends, service providers, agencies, staff, and community. San Andreas Regional Center accomplishes this vision through an organization that is trusted, responsive, supportive, creative, proactive, well-managed, and people friendly. (Read More...)
CWDR is a non-residential center for independent living providing assistance through independent living planning, peer support, advocacy, information and referrals. Our Commitment to you For over twenty five years, CWDR has enhanced our communities through advancing the empowerment, inclusion, and wellness of all persons with disabilities through advocacy, community education, peer mentoring, and skill development so that they may realize independence and full participation in life. (Read More...)
The PA Tourette Syndrome Alliance is a non-profit organization that promotes awareness and acceptance, provides education, and assists families, schools and communities while advocating for individuals with TS. The services provided by PA-TSA are focused on increasing understanding of the disorder and providing proven accommodations and strategies so a child or adult diagnosed with TS can succeed. Tourette Syndrome can be a very complex disorder and many people do not have a full understanding of these complexities. PA-TSA's programs and services include providing information, education, support and disability advocacy. They strive to promote understanding of Tourette Syndrome in order to promote acceptance of those diagnosed! (Read More...)
Brain Rehabilitation And Injury Network (B.R.A.I.N.) is a 501(c)(3) non-profit organization dedicated to advancing the highest level of research, recovery and residual care for adults who suffer from a brain injury, and to providing their families with resources and support. B.R.A.I.N. offers various therapies, classes, support groups, social activities, resources and referrals to brain injury survivors and their loved-ones. This multi-faceted and unique organization provides a place of understanding and hope to many. B.R.A.I.N.’s ultimate vision is to build a premier adult community that specializes in offering therapeutic solutions for brain injury survivors. Because each brain injury is unique, the center will be created to address individual needs. With over 1 million brain injuries occurring each year in America, it is time to give a voice to this unrecognized issue. EIN#: 943455820 (Read More...)
SAY: The Stuttering Association for the Young is a national non-profit organization that empowers, educates, and supports young people who stutter and the world that surrounds them. (Read More...)
Facing Disability is a web resource with more than 1,000 videos drawn from interviews of people with spinal cord injuries, their families, caregivers and experts. (Read More...)
Since 1980, the ACPA has offered peer support and education in pain management skills to people with pain, family and friends, and health care professionals. The information and tools on our site can help you to better understand your pain and work more effectively with your health care team toward a higher quality of life. (Read More...)