STAR Institute is the premier treatment, research and education center for children and adults with Sensory Processing Disorder (SPD). This includes feeding disorders and other disorders with sensory issues such as autism and ADHD. (Read More...)
The PA Tourette Syndrome Alliance is a non-profit organization that promotes awareness and acceptance, provides education, and assists families, schools and communities while advocating for individuals with TS. The services provided by PA-TSA are focused on increasing understanding of the disorder and providing proven accommodations and strategies so a child or adult diagnosed with TS can succeed. Tourette Syndrome can be a very complex disorder and many people do not have a full understanding of these complexities. PA-TSA's programs and services include providing information, education, support and disability advocacy. They strive to promote understanding of Tourette Syndrome in order to promote acceptance of those diagnosed! (Read More...)
Brain Rehabilitation And Injury Network (B.R.A.I.N.) is a 501(c)(3) non-profit organization dedicated to advancing the highest level of research, recovery and residual care for adults who suffer from a brain injury, and to providing their families with resources and support. B.R.A.I.N. offers various therapies, classes, support groups, social activities, resources and referrals to brain injury survivors and their loved-ones. This multi-faceted and unique organization provides a place of understanding and hope to many. B.R.A.I.N.’s ultimate vision is to build a premier adult community that specializes in offering therapeutic solutions for brain injury survivors. Because each brain injury is unique, the center will be created to address individual needs. With over 1 million brain injuries occurring each year in America, it is time to give a voice to this unrecognized issue. EIN#: 943455820 (Read More...)
CADDAC is a national, not-for-profit, organization providing leadership and support in awareness, education and advocacy for ADHD organizations and individuals across Canada. From a day to day perspective this means CADDAC organizes, builds and presents up-to-date scientifically based, educational programs; actively advocates to government and institutional decision makers for changes that will benefit those with ADHD, their families and care providers; provides one on one support and information to parents and adults with ADHD; provides networking between ADHD groups across Canada, and strives to increase the awareness and understanding of ADHD on all levels. For more information contact us at: Address - 7800 Kennedy Road, Suite 303A Markham ON L3R 2C7 Phone: (416) 637-8584 Website: http://www.caddac.ca/ (Read More...)
Support. Research. Hope. The mission Cure SMA Canada Society is: To fund the best possible Canadian research in search of a treatment or cure for Spinal Muscular Atrophy. To support Canadian families and individuals affected by Spinal Muscular Atrophy in every province and territory. To work closely with CURE SMA (USA) and the Scientific Advisory Board in our selection of recipients of research and trial grant monies. To offer and supply information to any Canadian requesting it. To support Canadian families and individuals affected by SMA as newly diagnosed, during the affected person’s lifetime and the family after an affected person passes. To offer support for activities that bring families and individuals together mutually benefitting all that are involved. (example: the annual SMA conference, SMA Family Camp, Parent’s retreat) To support individuals with their fundraising activities benefitting Cure SMA Canada. To supply members with newsletters for the purpose of information, connecting and communication. To connect families to each other through various methods including our website, social media, through our national office, our newsletter and group activities. To help families realize they are not alone with the diagnoses of SMA. That Cure SMA Canada is here for them and will support them in any capacity we can. We understand, because we too are affected by SMA or are parents of children born with Spinal Muscular Atrophy. (Read More...)
Girl Power 2 Cure - Rett University is a 501(c)(3) organization chartered to raise funding to support: 1. Rett Syndrome treatment and curative research 2. General family resource and emotional support of children/families affected by Rett Syndrome 3. Educational programs for disabled and non-verbal children suffering from Rett Syndrome and other debilitating neurological conditions (Downs Syndrome, CP, Angelman Syndrome, Autism, etc.) which limit their ability to communicate, read, and write in traditional classroom settings (includes teacher and professional training/seminars for therapists and other specialists targeting services to complex-needs individuals). Note: Rett Syndrome is a debilitating neurological condition which predominantly affects females, robbing them of the ability to speak, walk, or use their hands. It is caused by a random genetic mutation on the X-chromosome. 1 in 10,000 girls are affected, without regard to race, origin or any other common factor. (Read More...)
Facing Disability is a web resource with more than 1,000 videos drawn from interviews of people with spinal cord injuries, their families, caregivers and experts. (Read More...)
Since its founding in 1986, the National Educational Association of Disabled Students (NEADS), has had the mandate to support full access to education and employment for post-secondary students and graduates with disabilities across Canada. NEADS is a consumer-controlled, cross-disability charitable organization (corporation # 1007761975RR0001). We represent our constituents through specific projects, resources, research, publications and partnerships. NEADS is governed by a national Board of Directors representative of all of the provinces and territories. Our work as an organization focuses on three core Strategic Program areas: Student debt reduction Student experience in class and on campus Student and graduate employment The organization functions collaboratively with post-secondary stakeholders, other non-governmental organizations, employers, disability service providers (on college and university campuses) and communities that can improve opportunities in higher education and the labour market for persons with disabilities in Canada. NEADS also provides ongoing expert advice to Employment and Social Development Canada and provincial/territorial governments. We have been a stakeholder group of the Government of Canada's National Advisory Group on Student Financial Assistance -- Chaired by the Director General of the Canada Student Loans Program -- since 1987. Our work includes promoting government programs and services that support higher education for Canadians with disabilities. The Association is a member organization of the Council of Canadians With Disabilities (CCD). (Read More...)
Family Resource Center on Disabilities (FRCD) is a training center that provides parents of children with disabilities with information, training, assistance, and support. FRCD helps a wide variety of families and professionals on local, state, and national levels every day through informational workshops, phone trainings, and community outreach. We help you communicate more effectively with school professionals, obtain appropriate services for your child, effect positive change in your child’s school. You can call us at (312)939-3513 or send an e-mail to info@frcd.org. Our office hours are from Monday thru Friday 9 am to 5 pm. Visit our website at us online at www.frcd.org (Read More...)
The Yellow Pages for Kids User Guide will teach you how to be a more effective advocate. Learn how to build your team, get educated about your child's disability, find special education advocacy training, locate a parent group, and get legal and advocacy help. You may also want to subscribe to The Special Ed Advocate, the free online newsletter from Wrightslaw.com. Subscribe or learn more by clicking here. (Read More...)