Claire’s Place Foundation, Inc. is a 501(c)(3) non-profit organization providing support to children and families affected by cystic fibrosis (CF). Claire’s Place Foundation is named in honor of Claire Wineland who lived with CF her entire life and passed away at the age of 21. Claire was an activist, author, TEDx Speaker, social media star and received numerous awards. Claire’s foundation was a way for her to assure that others living with CF enjoyed the same hope, strength and joy that she enjoyed. Recipient of Los Angeles Business Journal’s “Small Nonprofit of the Year,” the foundation provides grants to families affected by CF, offering both emotional and financial support. Today, Claire’s Place Foundation continues to carry on Claire’s legacy. For more information visit www.clairesplacefoundation.org (Read More...)
Children and Adults with Attention-Deficit/Hyperactivity Disorder (CHADD), is a national non-profit, tax-exempt [Section 501(c)(3)] organization providing education, advocacy and support for individuals with ADHD. In addition to our informative website, CHADD also publishes a variety of printed materials to keep members and professionals current on research advances, medications and treatments affecting individuals with ADHD. These materials include Attention magazine, Attention weekly, a free electronically mailed current events newsletter, as well as other publications of specific interest to educators, professionals and parents. (Read More...)
SAY: The Stuttering Association for the Young is a national non-profit organization that empowers, educates, and supports young people who stutter and the world that surrounds them. (Read More...)
Founded in 2002, For Grace’s main goal is to increase awareness and promote education of the gender disparity women experience in the assessment and treatment of their pain. We believe empowering women to be better consumers for their pain management care, sensitizing the general public to gender pain disparities and enlightening public policy makers about pain as a major health issue will improve life outcomes for all women in chronic pain. Also, we see increased medical research about the differences in how men and women experience pain as part of the answer to alleviating the toll of human suffering. We believe medical research will pave the way for gender-specific therapies that will better manage persistent pain. (Read More...)
The Yellow Pages for Kids User Guide will teach you how to be a more effective advocate. Learn how to build your team, get educated about your child's disability, find special education advocacy training, locate a parent group, and get legal and advocacy help. You may also want to subscribe to The Special Ed Advocate, the free online newsletter from Wrightslaw.com. Subscribe or learn more by clicking here. (Read More...)
Support. Research. Hope. The mission Cure SMA Canada Society is: To fund the best possible Canadian research in search of a treatment or cure for Spinal Muscular Atrophy. To support Canadian families and individuals affected by Spinal Muscular Atrophy in every province and territory. To work closely with CURE SMA (USA) and the Scientific Advisory Board in our selection of recipients of research and trial grant monies. To offer and supply information to any Canadian requesting it. To support Canadian families and individuals affected by SMA as newly diagnosed, during the affected person’s lifetime and the family after an affected person passes. To offer support for activities that bring families and individuals together mutually benefitting all that are involved. (example: the annual SMA conference, SMA Family Camp, Parent’s retreat) To support individuals with their fundraising activities benefitting Cure SMA Canada. To supply members with newsletters for the purpose of information, connecting and communication. To connect families to each other through various methods including our website, social media, through our national office, our newsletter and group activities. To help families realize they are not alone with the diagnoses of SMA. That Cure SMA Canada is here for them and will support them in any capacity we can. We understand, because we too are affected by SMA or are parents of children born with Spinal Muscular Atrophy. (Read More...)
The PA Tourette Syndrome Alliance is a non-profit organization that promotes awareness and acceptance, provides education, and assists families, schools and communities while advocating for individuals with TS. The services provided by PA-TSA are focused on increasing understanding of the disorder and providing proven accommodations and strategies so a child or adult diagnosed with TS can succeed. Tourette Syndrome can be a very complex disorder and many people do not have a full understanding of these complexities. PA-TSA's programs and services include providing information, education, support and disability advocacy. They strive to promote understanding of Tourette Syndrome in order to promote acceptance of those diagnosed! (Read More...)
Girl Power 2 Cure - Rett University is a 501(c)(3) organization chartered to raise funding to support: 1. Rett Syndrome treatment and curative research 2. General family resource and emotional support of children/families affected by Rett Syndrome 3. Educational programs for disabled and non-verbal children suffering from Rett Syndrome and other debilitating neurological conditions (Downs Syndrome, CP, Angelman Syndrome, Autism, etc.) which limit their ability to communicate, read, and write in traditional classroom settings (includes teacher and professional training/seminars for therapists and other specialists targeting services to complex-needs individuals). Note: Rett Syndrome is a debilitating neurological condition which predominantly affects females, robbing them of the ability to speak, walk, or use their hands. It is caused by a random genetic mutation on the X-chromosome. 1 in 10,000 girls are affected, without regard to race, origin or any other common factor. (Read More...)
Brain Rehabilitation And Injury Network (B.R.A.I.N.) is a 501(c)(3) non-profit organization dedicated to advancing the highest level of research, recovery and residual care for adults who suffer from a brain injury, and to providing their families with resources and support. B.R.A.I.N. offers various therapies, classes, support groups, social activities, resources and referrals to brain injury survivors and their loved-ones. This multi-faceted and unique organization provides a place of understanding and hope to many. B.R.A.I.N.’s ultimate vision is to build a premier adult community that specializes in offering therapeutic solutions for brain injury survivors. Because each brain injury is unique, the center will be created to address individual needs. With over 1 million brain injuries occurring each year in America, it is time to give a voice to this unrecognized issue. EIN#: 943455820 (Read More...)
Since 1980, the ACPA has offered peer support and education in pain management skills to people with pain, family and friends, and health care professionals. The information and tools on our site can help you to better understand your pain and work more effectively with your health care team toward a higher quality of life. (Read More...)