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Babies affected with Turner Syndrome require a lifetime of specialized care beyond the pediatric setting. Obstacles often impede an early diagnosis for girls to receive critical health screenings and timely, life-altering, interventions. The Foundation’s advocacy efforts identify these gaps and give voice to leaders who can make a difference. The vision to improve the understanding of TS and to render support for women and children living with TS is made possible by advancing communications and inspiring relevant interest in this women’s health issue. Legislative advocacy, education, and research are cornerstone to improved outcomes. For more information about Turner Syndrome, please visit https://turnersyndromefoundation.org/welcome/ or call 1-800-594-4585.
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The mission of the Cassie Hines Shoes Cancer Foundation is to support young adults navigating a cancer diagnosis between the ages of 15 – 39 during and after their treatment by connecting them with each other through various types of social support.
Visit CHSCF.org for all of our program offerings, including our adventure based week in Michigan; Base2Summit.
Base2Summit is a FREE 6 day experience in Northern Michigan where we mix up biking, hiking, canoeing and exploring the Mitten with some down time on one of Michigan's supreme lakes.
*Must be 18 to participate
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We provide Education Tools for Pain Conditions. We are on a mission to reinvent how patients and clinicians absorb new science.
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The Soldiers Project provides free, confidential and unlimited mental health services to Post 9/11 Veterans, active duty service members, and their loved ones. We don’t turn anyone away based on discharge status, branch of service, or whether they saw combat. We are headquartered in Los Angeles, California with chapters in Sacramento, Seattle, Chicago, Houston, Philadelphia and New York City.
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The Self-Injury and Recovery Research and Resources(SIRRR) is part of the Cornell Research Program on Self-Injury and Recovery and summarizes our work, and provides links and resources to self injury information. Our work is intended to generate new research and insight into self-injury. We also aim to translate the growing body of knowledge about self-injury into resources and tools useful for
those seeking to better understand, treat, and prevent it.
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The Mission of Stop the Silence: Stop Child Sexual Abuse, Inc. (Stop the Silence) is to expose and stop child sexual abuse and help survivors heal worldwide. Our overarching Goals are to 1) promote CSA awareness, prevention, and healing; 2) stop child sexual abuse and related forms of violence; and 3) celebrate the lives of those healed. CSA is not one group’s problem; by expert accounts it is a silent pandemic throughout the United States and the world, creating havoc – for the affected children, the adult survivors, and the society. It can be prevented and treated with a conscious and sustained effort. Stop the Silence helps provide that effort.
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The Missouri Eating Disorders Council, in collaboration with appropriate organizations and stakeholders, in addition to the Departments of Mental Health, Health and Senior Services, Elementary and Secondary Education and Higher Education, will lead the development of eating disorders education, awareness and research initiatives throughout the state, and promote increased access to treatments supported by clinical practice guidelines (i.e., considering the relevant scientific literature, as well as the potential harms and benefits of treatment for each case).1-3
The Council will focus on children, adolescents, and adults with anorexia nervosa (AN), bulimia nervosa (BN), binge eating disorder (BED), atypical AN, sub threshold BN, sub threshold BED, and avoidant/restrictive food intake disorder (ARFID). These are the major diagnostic categories included in DSM-5.4 It will include the sub threshold diagnoses (atypical AN, sub threshold BN, sub threshold BED) because patients with these disorders demonstrate levels of distress and/or impairment similar to full-syndrome AN, BN, and BED.5
Eating disorder awareness, detection, prevention, treatment and recovery is of paramount importance and must start early. Early intervention is linked to better treatment outcomes, but requires enhanced awareness and screening.6 The Council will focus on helping professionals to recognize individuals with eating disorders and individuals at high risk for developing an eating disorder (e.g., those with high weight/shape concerns or low levels of compensatory behaviors).7-8 The Council will advocate for increased access to care for this population, as well as promote early intervention and prevention programs and recovery supports.
The absence of adequate coverage for treatment is a critical barrier to access to care for the patient.9 The high costs of medical complications, disability, and loss of life are significant health concerns.10-12 The Council will advocate for third party reimbursement for eating disorders, including coverage through private and public insurance plans.
The Council will work with identified partners, including state departments, to develop an eating disorders awareness program that targets patients with eating disorders as well as non-patient community members. This program will be designed to communicate that eating disorders are serious illnesses that require complete treatment, and to foster recognition of eating disorder symptoms and support for seeking treatment. The objectives of the awareness program are to educate Missouri citizens on the true and serious nature of the disease, dispel myths on who is affected, drive early intervention and encourage appropriate treatment for those suffering or those at risk.
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Mood Disorders Society of Canada (MDSC) was launched in 2001 to provide people with mood disorders, their families and caregivers a strong, cohesive voice at the national level on issues relating to mental health and mental illness. We have conducted extensive research on depression, bipolar disorder and other associated mood disorders, with the aim to improve access to treatment, inform research, shape program development and government policy to improve the quality of life for people affected by mood disorders.
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Bereaved Parents of the USA has chapters across the country that help grieving parents and families rebuild their lives after the death of a child. We want you to know you are not alone on your grief journey. BPUSA understands and cares about you and knows that as bereaved families, we truly share “A Journey Together.” Once a year we sponsor a National Gathering Conference that offers speakers, workshops, and special events to honor and remember our children.
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Wings-a Grief Education Ministry is a 501 c-3, non-profit, charitable organization founded by Nan & Gary Zastrow in 1993 with the express purpose of helping others understand the impact of loss/grief in one’s life. The organization supports and educates by listening, teaching, and sharing grief experiences that honor the past and rebuild the future. It offers workshops, seminars, support/education groups, and articles to heal the pain of loss. Current information is posted at their website.
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