Babies affected with Turner Syndrome require a lifetime of specialized care beyond the pediatric setting. Obstacles often impede an early diagnosis for girls to receive critical health screenings and timely, life-altering, interventions. The Foundation’s advocacy efforts identify these gaps and give voice to leaders who can make a difference. The vision to improve the understanding of TS and to render support for women and children living with TS is made possible by advancing communications and inspiring relevant interest in this women’s health issue. Legislative advocacy, education, and research are cornerstone to improved outcomes. For more information about Turner Syndrome, please visit https://turnersyndromefoundation.org/welcome/ or call 1-800-594-4585. (Read More...)
JAJF, a national 501(c)(3) nonprofit, treats children facing the loss of their young Mom or Dad to cancer to WOW! Experiences®...a prescribed timeout together as a family away from their late stage cancer to create positive, cherished, lasting memories…while they can. (Read More...)
No family is ever prepared to hear the four worst words: Your child has cancer. Friends of Karen, New York-based and serving families in the NY-TriState area since 1978, is a non-profit with a vision that every child with a life-threatening illness, and his or her family, will have all that they need to keep them stable, functioning and able to cope. Providing financial assistance, illness education and supportive counseling, among other services, our staff of experienced social workers, child life specialists and expressive arts therapists guide families from their child’s diagnosis through treatment, at no cost, so they have more time for what's most important: each other. (Read More...)
Young Adult Cancer Canada (YACC) supports young adults living with, through, and beyond cancer through digital, local, and national support programs. It is a connection to peers, bridge out of isolation, and source of inspiration. Every cancer, every stage, YACC’s got your back. (Read More...)
The Chordoma Foundation is a nonprofit organization working to improve the lives of those affected by chordoma and lead the search for a cure. Chordoma is a rare type of cancer that forms in the bones of the skull and spine and is diagnosed in just one in one million people per year. The Chordoma Foundation envisions a future in which everyone affected by chordoma is able to overcome the disease and maintain their quality of life through better treatments, better care, and a better patient experience. (Read More...)
The mission of Lucy’s Love Bus™ is to improve quality of life for children with cancer and life-threatening illness, to support their families, and to mobilize the next generation of cancer activists. Lucy's Love Bus pays for integrative therapies for children with cancer in New England, and holds programs and workshops in Amesbury, MA open to the families of children with cancer, life-threatening illness, or chronic medical conditions not developmental in nature. (Read More...)
Young Survival Coalition (YSC) is the premier organization dedicated to the critical issues unique to young women who are diagnosed with breast cancer. YSC offers resources, face to face connections and outreach so women feel supported, empowered and hopeful. YSC provides information and resources for young women during every phase of treatment and survivorship through peer matching, conferences, and comprehensive Navigator guidebooks and an audio/video library. Navigators and ResourceLink guidebooks can be downloaded electronically; or, hard-copy versions can be ordered and shipped free of charge to healthcare practitioners and patients at any time. (Read More...)
Teen Cancer America is a change agent improving the lives of young people with cancer. We create youth-centered ecosystems supporting young people with cancer, their families, and the hospitals and healthcare professionals who care for them. We partner with hospitals throughout the United States to develop specialized facilities and services for teens and young adults with cancer. We build teen friendly environments, enhancing the hospital experience. We develop standards for age-targeted care, improve collaboration between pediatric and adult specialists and enable dedicated research to improve outcomes and survival for our young people. (Read More...)
The National Pancreatic Cancer Foundation exists to deliver unwavering support for patients and families fighting pancreatic cancer. NPCF aims to increase awareness for pancreatic cancer and transform the experience of pancreatic cancer by delivering immediate unwavering support to all who seek it. Our primary programs include education, awareness, and financial assistance. Since it's inception in May of 2009, NPCF has helped over 237 families affected by pancreatic cancer with basic living expenses. (Read More...)
The mission of the Cassie Hines Shoes Cancer Foundation is to support young adults navigating a cancer diagnosis between the ages of 15 – 39 during and after their treatment by connecting them with each other through various types of social support. Visit CHSCF.org for all of our program offerings, including our adventure based week in Michigan; Base2Summit. Base2Summit is a FREE 6 day experience in Northern Michigan where we mix up biking, hiking, canoeing and exploring the Mitten with some down time on one of Michigan's supreme lakes. *Must be 18 to participate (Read More...)