Babies affected with Turner Syndrome require a lifetime of specialized care beyond the pediatric setting. Obstacles often impede an early diagnosis for girls to receive critical health screenings and timely, life-altering, interventions. The Foundation’s advocacy efforts identify these gaps and give voice to leaders who can make a difference. The vision to improve the understanding of TS and to render support for women and children living with TS is made possible by advancing communications and inspiring relevant interest in this women’s health issue. Legislative advocacy, education, and research are cornerstone to improved outcomes. For more information about Turner Syndrome, please visit https://turnersyndromefoundation.org/welcome/ or call 1-800-594-4585. (Read More...)
Ulman is a non-profit located in Baltimore, Maryland dedicated to creating a community of support for adolescents and young adults, and their families, impacted by cancer. We provide direct support services including on-site AYA patient navigators, remote navigation, support groups, social support as well as survivorship programming. Our focus is to meet patients where they are and to engage, encourage, educate and empower our patients to live well with a cancer diagnosis. (Read More...)
The Chordoma Foundation is a nonprofit organization working to improve the lives of those affected by chordoma and lead the search for a cure. Chordoma is a rare type of cancer that forms in the bones of the skull and spine and is diagnosed in just one in one million people per year. The Chordoma Foundation envisions a future in which everyone affected by chordoma is able to overcome the disease and maintain their quality of life through better treatments, better care, and a better patient experience. (Read More...)
"The first and most important benefit of Inspire is instantaneous: realizing that you are not alone with your diagnosis. No matter how remote in the world you may feel or how isolating your diagnosis, Inspire is that corner café or pub where everyone pulls up a chair to meet over shared concerns and learn something new." Inspire was created with the belief that patients and caregivers need a safe and secure place to support and connect with one another. We strive to be ethical and transparent, and we never forget that our community is built upon the trust of our members. We place the utmost value on this trust, and maintaining it is our highest priority. (Read More...)
A Breath of Hope Lung Foundation is dedicated to fighting lung cancer by funding innovative research, educating the public for improved disease awareness, and supporting patients and caregivers on the path to survivorship. (Read More...)
Young Adult Cancer Canada (YACC) supports young adults living with, through, and beyond cancer through digital, local, and national support programs. It is a connection to peers, bridge out of isolation, and source of inspiration. Every cancer, every stage, YACC’s got your back. (Read More...)
Young Adult Cancer Canada (YACC) supports young adults living with, through, and beyond cancer through digital, local, and national support programs. It is a connection to peers, bridge out of isolation, and source of inspiration. Every cancer, every stage, YACC’s got your back. (Read More...)
Hope for Two…The Pregnant with Cancer Network offers free support for women diagnosed with cancer while pregnant. We connect women who are currently pregnant with cancer with other women who have experienced a similar cancer diagnosis.Our mission here at Hope for Two is to provide women diagnosed with cancer while pregnant with information, support and hope. Our Guiding Values: We serve women in all socioeconomic, ethnic and religious backgrounds world-wide. Volunteers with a history of cancer while pregnant are the mainstays of our support network. We strive to remove barriers to women obtaining complete and accurate information about their options for dealing with cancer while pregnant. We respect and support every woman’s personal decisions without judgment. If you are looking to request support or become a volunteer support women you can visit our website at http://www.hopefortwo.org/ (Read More...)
The National Pancreatic Cancer Foundation exists to deliver unwavering support for patients and families fighting pancreatic cancer. NPCF aims to increase awareness for pancreatic cancer and transform the experience of pancreatic cancer by delivering immediate unwavering support to all who seek it. Our primary programs include education, awareness, and financial assistance. Since it's inception in May of 2009, NPCF has helped over 237 families affected by pancreatic cancer with basic living expenses. (Read More...)