Girl Power 2 Cure - Rett University is a 501(c)(3) organization chartered to raise funding to support: 1. Rett Syndrome treatment and curative research 2. General family resource and emotional support of children/families affected by Rett Syndrome 3. Educational programs for disabled and non-verbal children suffering from Rett Syndrome and other debilitating neurological conditions (Downs Syndrome, CP, Angelman Syndrome, Autism, etc.) which limit their ability to communicate, read, and write in traditional classroom settings (includes teacher and professional training/seminars for therapists and other specialists targeting services to complex-needs individuals). Note: Rett Syndrome is a debilitating neurological condition which predominantly affects females, robbing them of the ability to speak, walk, or use their hands. It is caused by a random genetic mutation on the X-chromosome. 1 in 10,000 girls are affected, without regard to race, origin or any other common factor. (Read More...)
Claire’s Place Foundation, Inc. is a 501(c)(3) non-profit organization providing support to children and families affected by cystic fibrosis (CF). Claire’s Place Foundation is named in honor of Claire Wineland who lived with CF her entire life and passed away at the age of 21. Claire was an activist, author, TEDx Speaker, social media star and received numerous awards. Claire’s foundation was a way for her to assure that others living with CF enjoyed the same hope, strength and joy that she enjoyed. Recipient of Los Angeles Business Journal’s “Small Nonprofit of the Year,” the foundation provides grants to families affected by CF, offering both emotional and financial support. Today, Claire’s Place Foundation continues to carry on Claire’s legacy. For more information visit www.clairesplacefoundation.org (Read More...)
The PA Tourette Syndrome Alliance is a non-profit organization that promotes awareness and acceptance, provides education, and assists families, schools and communities while advocating for individuals with TS. The services provided by PA-TSA are focused on increasing understanding of the disorder and providing proven accommodations and strategies so a child or adult diagnosed with TS can succeed. Tourette Syndrome can be a very complex disorder and many people do not have a full understanding of these complexities. PA-TSA's programs and services include providing information, education, support and disability advocacy. They strive to promote understanding of Tourette Syndrome in order to promote acceptance of those diagnosed! (Read More...)
CWDR is a non-residential center for independent living providing assistance through independent living planning, peer support, advocacy, information and referrals. Our Commitment to you For over twenty five years, CWDR has enhanced our communities through advancing the empowerment, inclusion, and wellness of all persons with disabilities through advocacy, community education, peer mentoring, and skill development so that they may realize independence and full participation in life. (Read More...)
Our Vision: People First Through Service, Advocacy, Respect, and Choice - A vision for leadership in service and advocacy for individuals with developmental disabilities. San Andreas Regional Center recognizes the ongoing need for advocacy to sustain the original intent and promise of the Lanterman Developmental Disabilities Act and commits itself to protecting its provisions. San Andreas Regional Center strives for community partnership and excellence in customer service with its well-trained staff and service providers who use up-to-date technology, are good at what they do and are committed to this vision. San Andreas Regional Center enables the individuals it serves and their families to determine what happens in their lives. San Andreas Regional Center fulfills this vision through respect for the people it serves and their families, friends, service providers, agencies, staff, and community. San Andreas Regional Center accomplishes this vision through an organization that is trusted, responsive, supportive, creative, proactive, well-managed, and people friendly. (Read More...)
Facing Disability is a web resource with more than 1,000 videos drawn from interviews of people with spinal cord injuries, their families, caregivers and experts. (Read More...)
The Attention Deficit Disorder Association provides information, resources and networking opportunities to help adults with Attention Deficit Hyperactivity Disorder lead better lives. We provide hope, empowerment and connections worldwide by bringing together science and the human experience for both adults with ADHD and professionals who serve them. (Read More...)
Founded in 2002, For Grace’s main goal is to increase awareness and promote education of the gender disparity women experience in the assessment and treatment of their pain. We believe empowering women to be better consumers for their pain management care, sensitizing the general public to gender pain disparities and enlightening public policy makers about pain as a major health issue will improve life outcomes for all women in chronic pain. Also, we see increased medical research about the differences in how men and women experience pain as part of the answer to alleviating the toll of human suffering. We believe medical research will pave the way for gender-specific therapies that will better manage persistent pain. (Read More...)
STAR Institute is the premier treatment, research and education center for children and adults with Sensory Processing Disorder (SPD). This includes feeding disorders and other disorders with sensory issues such as autism and ADHD. (Read More...)
CADDAC is a national, not-for-profit, organization providing leadership and support in awareness, education and advocacy for ADHD organizations and individuals across Canada. From a day to day perspective this means CADDAC organizes, builds and presents up-to-date scientifically based, educational programs; actively advocates to government and institutional decision makers for changes that will benefit those with ADHD, their families and care providers; provides one on one support and information to parents and adults with ADHD; provides networking between ADHD groups across Canada, and strives to increase the awareness and understanding of ADHD on all levels. For more information contact us at: Address - 7800 Kennedy Road, Suite 303A Markham ON L3R 2C7 Phone: (416) 637-8584 Website: http://www.caddac.ca/ (Read More...)