Our Vision: People First Through Service, Advocacy, Respect, and Choice - A vision for leadership in service and advocacy for individuals with developmental disabilities. San Andreas Regional Center recognizes the ongoing need for advocacy to sustain the original intent and promise of the Lanterman Developmental Disabilities Act and commits itself to protecting its provisions. San Andreas Regional Center strives for community partnership and excellence in customer service with its well-trained staff and service providers who use up-to-date technology, are good at what they do and are committed to this vision. San Andreas Regional Center enables the individuals it serves and their families to determine what happens in their lives. San Andreas Regional Center fulfills this vision through respect for the people it serves and their families, friends, service providers, agencies, staff, and community. San Andreas Regional Center accomplishes this vision through an organization that is trusted, responsive, supportive, creative, proactive, well-managed, and people friendly. (Read More...)
Girl Power 2 Cure - Rett University is a 501(c)(3) organization chartered to raise funding to support: 1. Rett Syndrome treatment and curative research 2. General family resource and emotional support of children/families affected by Rett Syndrome 3. Educational programs for disabled and non-verbal children suffering from Rett Syndrome and other debilitating neurological conditions (Downs Syndrome, CP, Angelman Syndrome, Autism, etc.) which limit their ability to communicate, read, and write in traditional classroom settings (includes teacher and professional training/seminars for therapists and other specialists targeting services to complex-needs individuals). Note: Rett Syndrome is a debilitating neurological condition which predominantly affects females, robbing them of the ability to speak, walk, or use their hands. It is caused by a random genetic mutation on the X-chromosome. 1 in 10,000 girls are affected, without regard to race, origin or any other common factor. (Read More...)
The Yellow Pages for Kids User Guide will teach you how to be a more effective advocate. Learn how to build your team, get educated about your child's disability, find special education advocacy training, locate a parent group, and get legal and advocacy help. You may also want to subscribe to The Special Ed Advocate, the free online newsletter from Wrightslaw.com. Subscribe or learn more by clicking here. (Read More...)
Support. Research. Hope. The mission Cure SMA Canada Society is: To fund the best possible Canadian research in search of a treatment or cure for Spinal Muscular Atrophy. To support Canadian families and individuals affected by Spinal Muscular Atrophy in every province and territory. To work closely with CURE SMA (USA) and the Scientific Advisory Board in our selection of recipients of research and trial grant monies. To offer and supply information to any Canadian requesting it. To support Canadian families and individuals affected by SMA as newly diagnosed, during the affected person’s lifetime and the family after an affected person passes. To offer support for activities that bring families and individuals together mutually benefitting all that are involved. (example: the annual SMA conference, SMA Family Camp, Parent’s retreat) To support individuals with their fundraising activities benefitting Cure SMA Canada. To supply members with newsletters for the purpose of information, connecting and communication. To connect families to each other through various methods including our website, social media, through our national office, our newsletter and group activities. To help families realize they are not alone with the diagnoses of SMA. That Cure SMA Canada is here for them and will support them in any capacity we can. We understand, because we too are affected by SMA or are parents of children born with Spinal Muscular Atrophy. (Read More...)
Children and Adults with Attention-Deficit/Hyperactivity Disorder (CHADD), is a national non-profit, tax-exempt [Section 501(c)(3)] organization providing education, advocacy and support for individuals with ADHD. In addition to our informative website, CHADD also publishes a variety of printed materials to keep members and professionals current on research advances, medications and treatments affecting individuals with ADHD. These materials include Attention magazine, Attention weekly, a free electronically mailed current events newsletter, as well as other publications of specific interest to educators, professionals and parents. (Read More...)
The U.S. Pain Foundation is the leading advocacy organization for people with pain. Its mission is to empower, educate, connect, and advocate for individuals living with chronic illness that causes pain, as well as their caregivers and clinicians. Through multiple programs and services, the U.S. Pain Foundation works to enhance the quality of life for people with pain, improve patient outcomes, address access and affordability issues, and increase public awareness and empathy for the issue of pain. The U.S. Pain Foundation is an independent nonprofit 501(c)(3) organization. (Read More...)
SAY: The Stuttering Association for the Young is a national non-profit organization that empowers, educates, and supports young people who stutter and the world that surrounds them. (Read More...)
Since 1980, the ACPA has offered peer support and education in pain management skills to people with pain, family and friends, and health care professionals. The information and tools on our site can help you to better understand your pain and work more effectively with your health care team toward a higher quality of life. (Read More...)
Family Resource Center on Disabilities (FRCD) is a training center that provides parents of children with disabilities with information, training, assistance, and support. FRCD helps a wide variety of families and professionals on local, state, and national levels every day through informational workshops, phone trainings, and community outreach. We help you communicate more effectively with school professionals, obtain appropriate services for your child, effect positive change in your child’s school. You can call us at (312)939-3513 or send an e-mail to info@frcd.org. Our office hours are from Monday thru Friday 9 am to 5 pm. Visit our website at us online at www.frcd.org (Read More...)
Facing Disability is a web resource with more than 1,000 videos drawn from interviews of people with spinal cord injuries, their families, caregivers and experts. (Read More...)