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The mission of Share Pregnancy and Infant Loss Support is to serve those whose lives are touched by the tragic death of a baby through pregnancy loss, stillbirth or in the first few months of life. The work of Share and its supporters often goes unnoticed until tragedy occurs. At Share, bereaved parents find comfort in friendship, strength in shared experiences and hope for healing and happiness. Share, which has more than 75 groups across the country, strives to support every family that is put into these tragic circumstances by hosting support group meetings, by providing online support through Facebook, and by distributing bereavement resources and information. The national office also offers bereavement education and training to professionals, clergy and funeral directors throughout the United States. Share has been offering support to families since 1977. The National Office is headquartered in St. Charles, MO. For more information about Share, please call the National Share Office at 636-947-6164 or visit www.nationalshare.org.
The Missouri Eating Disorders Council, in collaboration with appropriate organizations and stakeholders, in addition to the Departments of Mental Health, Health and Senior Services, Elementary and Secondary Education and Higher Education, will lead the development of eating disorders education, awareness and research initiatives throughout the state, and promote increased access to treatments supported by clinical practice guidelines (i.e., considering the relevant scientific literature, as well as the potential harms and benefits of treatment for each case).1-3
The Council will focus on children, adolescents, and adults with anorexia nervosa (AN), bulimia nervosa (BN), binge eating disorder (BED), atypical AN, sub threshold BN, sub threshold BED, and avoidant/restrictive food intake disorder (ARFID). These are the major diagnostic categories included in DSM-5.4 It will include the sub threshold diagnoses (atypical AN, sub threshold BN, sub threshold BED) because patients with these disorders demonstrate levels of distress and/or impairment similar to full-syndrome AN, BN, and BED.5
Eating disorder awareness, detection, prevention, treatment and recovery is of paramount importance and must start early. Early intervention is linked to better treatment outcomes, but requires enhanced awareness and screening.6 The Council will focus on helping professionals to recognize individuals with eating disorders and individuals at high risk for developing an eating disorder (e.g., those with high weight/shape concerns or low levels of compensatory behaviors).7-8 The Council will advocate for increased access to care for this population, as well as promote early intervention and prevention programs and recovery supports.
The absence of adequate coverage for treatment is a critical barrier to access to care for the patient.9 The high costs of medical complications, disability, and loss of life are significant health concerns.10-12 The Council will advocate for third party reimbursement for eating disorders, including coverage through private and public insurance plans.
The Council will work with identified partners, including state departments, to develop an eating disorders awareness program that targets patients with eating disorders as well as non-patient community members. This program will be designed to communicate that eating disorders are serious illnesses that require complete treatment, and to foster recognition of eating disorder symptoms and support for seeking treatment. The objectives of the awareness program are to educate Missouri citizens on the true and serious nature of the disease, dispel myths on who is affected, drive early intervention and encourage appropriate treatment for those suffering or those at risk.
Young Survival Coalition (YSC) is the premier organization dedicated to the critical issues unique to young women who are diagnosed with breast cancer. YSC offers resources, face to face connections and outreach so women feel supported, empowered and hopeful. YSC provides information and resources for young women during every phase of treatment and survivorship through peer matching, conferences, and comprehensive Navigator guidebooks and an audio/video library. Navigators and ResourceLink guidebooks can be downloaded electronically; or, hard-copy versions can be ordered and shipped free of charge to healthcare practitioners and patients at any time.
The Young Carers Initiative has been supporting the wellbeing and resilience of young carers and their families in Haldimand, Norfolk and Niagara since 2003. Young carers are the hidden population of family caregivers and include children, youth, and young adults who provide care for a family member due to a chronic illness, disability (physical or intellectual), mental health issue, addiction issue, or socioeconomic factor (single parent family, language barrier, etc.). In addition to a caregiving role, young carers may also experience the emotional impact of a family member needing their support. Recent research shows that young carers are at greater risk of depressive symptoms, lower self-esteem and higher levels of loneliness and anxiety when compared to their non-caregiving peers. One recent study from Brock University shows that young carers provide on average 14 hours per week while almost ¼ spend 3 to 6 hours per day, which is equivalent of a part-time job.
Our program called Powerhouse Project offers a variety of free services and activities to empower young carers and give them respite from their caregiving responsibilities. All of our services aim to reduce isolation and caregiver fatigue, alleviate stress and anxiety, and invest peer support. Everything we do is focused on helping young carers achieve future success.
The Breast Cancer Charities of America exists to eliminate breast cancer as a life-threatening illness. We bring together organizations representing all health and social service disciplines in the commitment to establish new and unprecedented levels of effectiveness in resources, education, advocacy and support. BCCA is the only non-profit bringing the ‘integrated cancer care’ message to women of America.
We’re passionate about truly helping women, mind body and spirit. Our programs allow us to educate on prevention, financially assist those battling breast cancer, make women feel beautiful again, get necessary supplies to developing countries, and even make a difference in our own community.
The mission of The Eating Disorder Foundation is to be an effective resource in the prevention and elimination of eating disorders through education, support, and advocacy. We offer a variety of free support groups, drop-in services, and free educational presentations. Please see our website for more information on our current offerings.
NICU Helping Hands provides support and education to families before, during and after a NICU admission or the loss of a baby. Our commitment is to walk alongside your family during these difficult and often times traumatic experiences. Our peer support program and educational resources are available to you at no charge. We are here to equip you with the tools and resources you need before, during or after a NICU hospitalization or in the event of an infant loss. You are not alone.
Since its founding in 1986, the National Educational Association of Disabled Students (NEADS), has had the mandate to support full access to education and employment for post-secondary students and graduates with disabilities across Canada.
NEADS is a consumer-controlled, cross-disability charitable organization (corporation # 1007761975RR0001). We represent our constituents through specific projects, resources, research, publications and partnerships. NEADS is governed by a national Board of Directors representative of all of the provinces and territories.
Our work as an organization focuses on three core Strategic Program areas:
Student debt reduction
Student experience in class and on campus
Student and graduate employment
The organization functions collaboratively with post-secondary stakeholders, other non-governmental organizations, employers, disability service providers (on college and university campuses) and communities that can improve opportunities in higher education and the labour market for persons with disabilities in Canada. NEADS also provides ongoing expert advice to Employment and Social Development Canada and provincial/territorial governments. We have been a stakeholder group of the Government of Canada's National Advisory Group on Student Financial Assistance -- Chaired by the Director General of the Canada Student Loans Program -- since 1987. Our work includes promoting government programs and services that support higher education for Canadians with disabilities. The Association is a member organization of the Council of Canadians With Disabilities (CCD).
GRIEF WATCH is a publisher and manufacturer of bereavement books and materials used by families and professionals around the country. It is based at the 18th Ave Peace House, site of a variety of ministries focused on hospitality, community, peace-making, and care for the dying.
Melissa Drake is the founder of Brilliant Transformations. She is an Editor, Truthteller, and coach with a passion for words, writing, positive energy, and helping others recover from life’s tough transitions. She knows from personal experience, it's important to live your own truth over the truth others prescribed for you. She also knows writing helps process and heal your own hurts.
Once written, the act of sharing your story with others (whether that's on a small scale in an intimate support group, or on a large scale by publishing your story), can empower others. She desires to help individuals Live their Truth, Write their Story, and Empower Others. Her own vulnerable stories of survival have been featured on several global platforms including, Women for One, elephant journal, Scary Mommy, The Good Men Project, The Urban Howl, Thought Catalog, Sick Biz, She Owns It, and The SHFT Blog.
Connect with her on her website or on Facebook. She also has a closed group for individuals experiencing life’s tough transitions, that includes positive daily messaging. Request membership here. You can also follow Melissa on Instagram and Twitter.
Melissa knows and shows hope. There's life after depression and it's brilliant.