Showing All Expert Resources
Hand to Hold’s vision is to enable a network of families to offer support, comfort and understanding to one another, and to provide them with knowledge, information and resources to reduce the impact of a NICU stay and ensure the best outcome for their children and family by:
Empowering parents to advocate for their children
Facilitating peer support and encouraging individual, couple and family counseling when needed
Educating parents about the challenges their babies might face and preparing them to meet those needs
Sharing support and resources to help comfort families following a terminal diagnosis or loss of a baby
Working with healthcare professionals, hospital systems and specialists to ensure families thrive during and after a NICU stay
On September 2, 2005 we received a phone call saying in essence, our daughter Cammy‘s heart was not beating, and she was on her way to Erlanger hospital by way of ambulance. While we huddled with close friends and family in prayer, we were given the devastating news that she was gone.
How does something like this happen to a vibrant 26 year old young woman? How do you reconcile just two days prior taking a long walk with someone who expressed her dreams for the future who appeared healthy and happy. Well, I can only state that eating disorders are deadly.
She suffered from all three of the eating disorders (defined in the Diagnostic and Statistical Manual for Mental Disorders #4). She had binge eating disorder in high school, where she ate in excess in private. During her freshmen year in college she turned to bulimia to rid herself of her excess high school weight. She could eat large amounts of food and then purge by way of vomiting. She was also pairing her bulimia with anorexia which can often be the case. This behavior took its toll when in her junior year of college she went into cardiac arrest, and we almost lost her for the first time. We learned when you purge you rid yourself of essential electrolytes that control the beating of the heart and thus causing it to shut down.
We sent her for treatment to Arizona to save her life, and to hopefully help her overcome her E.D. When she left after almost three months we thought she had it beaten. Unfortunately, there were additional life threatening instances that followed. Eating Disorders seemed to control her in such a way that nothing seemed to help. After many years of therapy and finding the true love of her life we thought she was finally on the road to recovery. This proved not to be the case. We are not sure to this day what exactly caused her final cardiac failure, but for sure it was a result of her eating disorders.
To honor her memory Ashley Yates (her closest friend) and I (Jan Robinson, Cammy’s Mother) founded the Mary Cameron Robinson (MCR) Foundation for the prevention and treatment of eating disorders. It would have been so helpful to me had there been a source like this when Cammy was struggling. There is so much to learn about this disease and the earlier it is treated the better the chance of survival. Denying it will not cause it to go away. We must educate ourselves to be aware of the behaviors and to intervene as soon as possible. This is absolutely crucial. Cammy would be so proud to know her death was not in vain and she lives on with this foundation.
MCR’S Mission Statement
The mission of the MCR Foundation is to provide resources for people who are affected by eating disorders in the Greater Chattanooga Tri-State area. The Foundation is committed to a holistic approach encompassing physical, emotional, spiritual, and social well being.
MCR will do this by:
• Providing education and multi-media resources
• Promoting awareness and developing prevention strategies
• Providing support systems
• Conducting research for community needs
• Promoting a healthy lifestyle and a appropriate self image
• Serve as a resource for referrals for counseling and treatment
The MCR Foundation will be a comprehensive non-profit center in the Chattanooga Tri-State area for education concerning prevention early diagnosis and treatment of individuals and families affected by eating disorders, focusing on healing the mind, body, and spirit.
Stop Cancer Before It Starts!®
Reducing the cancer mortality rate by focusing individual behaviors, public policy, and research on prevention and early detection
Addressing all preventable cancers across all populations
Making prevention knowledge and early detection services more accessible for people in medically underserved communities
Collaborating with partners to maximize the effectiveness and reach of the prevention and early detection programs and message
Creating an energizing and productive workplace that people want to join
The mission of the Prevent Cancer Foundation is saving lives across all populations through cancer prevention and early detection
HealGrief, a nonprofit, is a social support network for people who are grieving, bereaved or for those just wanting to help them. By taking a modern approach to the way individuals communicate a loved one’s death, HealGrief brings family, friends and communities from around the globe to a virtual place to grieve and heal together. Everything they do is inspired by their core mission: guiding one’s journey with grief into a healthy grief recovery.
From the moment a loved one dies, HealGrief.org guides individuals through grief’s journey. They begin by taking the place of the traditional obituary. At no cost, users create a funeral notice and can choose to disseminate it to family and friends around the globe. From within the funeral notice, virtual candles are lit and memories are shared. Cathartic to users, this provides instant comfort as the funeral notice transitions into a celebration of the decedent’s life. This online interaction, changes the way we handle grief, but ultimately provides comfort as one journeys to a healthy grief recovery.
Additional no-fee programs include a virtual:
Candle Gallery - Individuals can light and share a virtual candle in memory of their loved one;
Before I Die…wall - A virtual wall provoking thoughts about living life, to its fullest, every day.
Loss Project & Artful Healing - Inspiring healing through art.
PetsCountToo! - Providing tools to guide a child’s first experience with death into a healthy grief recovery.
CurePSP is the leading source of information and support for patients and their families, other caregivers, researchers and healthcare professionals on prime of life neurodegeneration including PSP, CBD and related diseases. For more information, materials and support, please visit www.psp.org.
STAR Institute is the premier
treatment, research and education
center for children and adults with
Sensory Processing Disorder (SPD). This includes feeding disorders and other disorders with sensory issues such as autism and ADHD.
Personality Disorder Awareness Network (PDAN) is a not-for-profit organization dedicated to increasing public awareness of personality disorders, alleviating the impact of personality disorders on families, and intervening early in the personality development of children.
Active Minds is the young adult voice in mental health advocacy. By supporting a rapidly growing network of hundreds of student-led chapters at colleges and universities, Active Minds empowers students to speak openly about mental health in order to educate others and encourage help-seeking. Active Minds is a national nonprofit. Follow us on Twitter./>
Melissa Drake is the founder of Brilliant Transformations. She is an Editor, Truthteller, and coach with a passion for words, writing, positive energy, and helping others recover from life’s tough transitions. She knows from personal experience, it's important to live your own truth over the truth others prescribed for you. She also knows writing helps process and heal your own hurts.
Once written, the act of sharing your story with others (whether that's on a small scale in an intimate support group, or on a large scale by publishing your story), can empower others. She desires to help individuals Live their Truth, Write their Story, and Empower Others. Her own vulnerable stories of survival have been featured on several global platforms including, Women for One, elephant journal, Scary Mommy, The Good Men Project, The Urban Howl, Thought Catalog, Sick Biz, She Owns It, and The SHFT Blog.
Connect with her on her website or on Facebook. She also has a closed group for individuals experiencing life’s tough transitions, that includes positive daily messaging. Request membership here. You can also follow Melissa on Instagram and Twitter.
Melissa knows and shows hope. There's life after depression and it's brilliant.
The Yellow Pages for Kids User Guide will teach you how to be a more effective advocate. Learn how to build your team, get educated about your child's disability, find special education advocacy training, locate a parent group, and get legal and advocacy help.
You may also want to subscribe to The Special Ed Advocate, the free online newsletter from Wrightslaw.com. Subscribe or learn more by clicking here.