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Support. Research. Hope.
The mission Cure SMA Canada Society is:
To fund the best possible Canadian research in search of a treatment or cure for Spinal Muscular Atrophy.
To support Canadian families and individuals affected by Spinal Muscular Atrophy in every province and territory.
To work closely with CURE SMA (USA) and the Scientific Advisory Board in our selection of recipients of research and trial grant monies.
To offer and supply information to any Canadian requesting it.
To support Canadian families and individuals affected by SMA as newly diagnosed, during the affected person’s lifetime and the family after an affected person passes.
To offer support for activities that bring families and individuals together mutually benefitting all that are involved. (example: the annual SMA conference, SMA Family Camp, Parent’s retreat)
To support individuals with their fundraising activities benefitting Cure SMA Canada.
To supply members with newsletters for the purpose of information, connecting and communication.
To connect families to each other through various methods including our website, social media, through our national office, our newsletter and group activities.
To help families realize they are not alone with the diagnoses of SMA. That Cure SMA Canada is here for them and will support them in any capacity we can. We understand, because we too are affected by SMA or are parents of children born with Spinal Muscular Atrophy.
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String of Pearls was created to provide a nurturing and safe place for families as they navigate the path following a fatal prenatal diagnosis that will result in the death of their baby prior to, or shortly after birth. The path between grief and hope is a difficult place to walk; our desire is to provide guidance, compassion and practical suggestions as plans to honor the life of pre-born babies are crafted. Each life has a story worth telling, and we are here for support as stories are lovingly written.
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Out of the FOG was launched in 2007 to provide information and support to the family members and loved-ones of individuals who suffer from a personality disorder.
Dealing with a loved-one or family member who suffers from a personality disorder can sometimes feel like navigating through a fog. FOG stands for Fear, Obligation, Guilt - feelings which often result from being in a relationship with a person who suffers from a Personality Disorder. The FOG acronym was coined by Susan Forward & Donna Frazier in their book Emotional Blackmail. It is our hope that this site may help some navigate out of the FOG in their own lives.
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Mission & Vision
Kara’s mission is to provide grief support for children, teens, families and adults. Our guiding values are empathy and compassion. Every day we provide caring support to children and adults affected by loss and grief. Our vision is to see people of all ages compassionately supported on their journey through grief so they can move toward renewed hope and meaning. We serve individuals who are grieving a death as well as those managing a terminal illness (their own or another's).
History
Kara' s founding is rooted in the early 1970s, when a growing awareness swept through the United States, England and other countries that the way contemporary society handled death, based in the medical establishment, was inadequate. The seminal work of Dr. Elizabeth Kubler-Ross and the emerging hospice movement stimulated discussions about death and dying in Palo Alto and other communities. During this same period, Dr. Charles Garfield established the Shanti Project in San Francisco to train and engage volunteers to serve and support dying patients. Palo Alto Projects, modeled after the Shanti Model of Peer Support, was incorporated in December 1976, with 17 peer counselor volunteers. In February of 1978 the organization's name was officially changed to Kara to more accurately reflect its grief support focused mission. Today, our staff and over 150 trained volunteers serve and support those who are grieving in our community. Kara does not espouse a particular religion or philosophy. We encourage those we serve to draw strength from their own personal spiritual beliefs, family, friends and other community resources to build sustaining support.
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Little Warriors is a national, charitable organization focused on the awareness, prevention and treatment of child sexual abuse. We also advocate on behalf of and with child sexual abuse survivors.
Little Warriors offers a free workshop called Prevent It! to educate adults on how to help prevent and respond to child sexual abuse.
The Little Warriors Be Brave Ranch located east of Edmonton Alberta is a specialized, intensive, trauma-informed, evidence-based treatment centre solely focused on helping children from across Canada who have been sexually abused, as well as their families. The program is for girls and boys from 8-12 years old and girls between the ages of 13 and 16 and is a one-year combined onsite and outpatient program designed with significant input from many leading academic and clinical experts who specialize in child sexual abuse and trauma.
The Little Warriors Be Brave Bridge is a comprehensive online program that connects specialized counsellors and coaches with children, teens and parents impacted by child sexual abuse who might not otherwise receive timely mental health support. The program offers similar evidence-based, specialized trauma treatment that’s provided at the Be Brave Ranch as we have taken the insights used at the Ranch and embedded them into the Be Brave Bridge online program. All of the information provided has been carefully researched and offers the most effective interventions and strategies.
For more information visit our website at littlewarriors.ca
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Mental Health & Addiction Association of Oregon (MHAAO) promotes self-directed recovery and wellness for all individuals with mental health and addiction issues, whom we refer to as peers. We provide community-based and on-call peer support services, weekly peer support for peer support groups, and a virtual 80-hour Peer Wellness Specialist training offered live several times throughout the year.
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The Lesbian Gay Bi Trans Youth Line exists to provide service for youth, by youth that affirms the experiences and aspirations of lesbian, gay, bisexual, transsexual, transgender, 2-spirit, queer and questioning youth in Ontario. Working within an anti-oppression and anti-racist framework, we provide leadership opportunities, outreach, confidential peer support and referrals by telephone, texting and online. We want to hear from you if you have a question, if you need to know what events and supports are in your area, if you have a concern, or if you just need to talk.
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Infants Remembered In Silence © (IRIS), a nonprofit organization, supplements the care given by the medical, mental health, and religious communities by providing resources and referral information, support and education to parents, family, friends, and professionals after a child dies in early pregnancy (ectopic pregnancy, molar pregnancy, miscarriage, etc.) or from stillbirth, neo-natal death, birth defects, Sudden Unexpected Infant Death (SUID/SIDS) and related syndromes, illness, accident, and all other types of infant and early childhood death.
IRIS offers a wide variety of services including Midday Support Groups, Evening Support Groups, one on one Support Services, and much more. Please visit our website at www.irisRemembers.com and find us on social media.
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Ulman is a non-profit located in Baltimore, Maryland dedicated to creating a community of support for adolescents and young adults, and their families, impacted by cancer. We provide direct support services including on-site AYA patient navigators, remote navigation, support groups, social support as well as survivorship programming. Our focus is to meet patients where they are and to engage, encourage, educate and empower our patients to live well with a cancer diagnosis.
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Brain Rehabilitation And Injury Network (B.R.A.I.N.) is a 501(c)(3) non-profit organization dedicated to advancing the highest level of research, recovery and residual care for adults who suffer from a brain injury, and to providing their families with resources and support.
B.R.A.I.N. offers various therapies, classes, support groups, social activities, resources and referrals to brain injury survivors and their loved-ones. This multi-faceted and unique organization provides a place of understanding and hope to many.
B.R.A.I.N.’s ultimate vision is to build a premier adult community that specializes in offering therapeutic solutions for brain injury survivors. Because each brain injury is unique, the center will be created to address individual needs. With over 1 million brain injuries occurring each year in America, it is time to give a voice to this unrecognized issue.
EIN#: 943455820
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